• Heart of a Child CD
• Mending Hearts Quilt Story
• 2004 AHA Heart Walk
• Donate

• 2003
• 2004
• 2005

PA-IVS or HRHS Links

• American Heart Association - "Pulmonary Atresia"


• HeartCenterOnline.com - "Pulmonary Atresia"


• EMedicine.com - "Pulmonary Atresia With Intact Ventricular Septum"


• Texas Heart Institute - "Pulmonary Atresia"


• Online support group for parents of children with HRHS -
  Yahoo Goup: HypoplasticRight - (requires membership)


• Definition of PA-IVS


• A diagram of a heart with PA-IVS

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ATS Articles

• "Long-term results in neonates with pulmonary atresia and intact ventricular septum"


• "Pulmonary Atresia With Intact Ventricular Septum:
  Long-Term Results of 'One and a Half Ventricular Repair'"

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American Heart Association/Donation Links

• Our local AHA heart walk - Bryan/College Station AHA Heart Walk


• Our AHA heart walk team - Sharby Congenital Heart Team


• AHA page on the Legacy of Life Endowment and AHA info on CHDs


• Madelynn and the Legacy of Life Endowment


• Zachary Brooks Endowment and info about Kids with Heart -
  www.zbchde.org - or - mirror


• Order CHD merchandise to support CHD awareness and families - CHD Families


• AHA Factsheet on CHDs


• The normal heart and how it works

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Texas Children’s Hospital Links

• Texas Children’s Hospital


• The Heart Center at Texas Children’s


• Online support group for parents of patients at Texas Children’s -
  Yahoo Group: CHD_families_of_TxChildrens - (requires membership)


• Yahoo Goup: Little Hearts of Houston

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Order CHD Merchandise

• Order CHD merchandise to support CHD awareness and families - CHD Families


• Saving Little Hearts

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Atley Parker Bowles Link

Atley Parker Bowles is one of the most similar cases we know of to what Justin started with; however, he had a MUCH rockier first year after his catheter procedure (same as Justin had) resulted in a disaster, emergency open-heart surgery, and two months on the ventilator. Atley has struggled a lot more than Justin, but he as of 2004, he is still on a two-ventricle route as Justin is. Atley had his ASD closed via catheter in September 2004 (which we expect to have done in 2006).

• Read Atley’s story and see lots of good diagrams of PA-IVS and HRHS - www.atleysheart.com

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General Heart Links

• PBS film (about the BT-shunt, which pioneered the field of pediatric cardiology in 1944) - "Partners of the Heart"


• An article on a pediatric heart surgeon (Jan Quaegebeur at Children’s Hospital of NewYork-Presbyterian) and the Fontan surgery of a little girl with HRHS (this article was condensed and appeared in the August 2004 Reader’s Digest) - "Small Miracles" - New York Metro


• Article on loss of a child - "Stress, Change and Loss"


• Maclaren Major Special Needs Stroller


• HeartCenterOnline has descriptions of lots of CHDs and a discussion board for any type of CHD (or here).
  (requires registration)
  


• TCHIN - The largest international information and support group
  (requires membership for some features)


• Club of Hearts - stories of many precious heart kids


• CHD Awareness Quilts


• Kids with Heart - For great books and parent matching


• Congenital Heart Defects.com

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